Category Archives: Student Support

Students do not all fit into the same box. Therefore, they need the option of extra assistance or an option to move above and beyond the classroom curriculum.

Navigating Learning Disabilities and the Cost for Treatment

Education

Living with a learning disability can be a source of great frustration if it’s not fully understood – especially during a child’s school-age years. These disabilities have very little to do with a child’s behavior or level of intelligence. Rather, it comes down to understanding that people who live with learning disabilities are living with a different cognitive wiring than others.

For this reason, a learning disability can affect multiple areas of a person’s life well into adulthood. What can be helpful, however is early diagnosis and early intervention. By identifying a learning disability and implementing adequate and affordable tools for treatment, your child can have a full and productive life.

Types of learning disabilities

There can be a danger of generalizing all learning disabilities by saying that they merely cause difficulty with comprehension. The reality is there are multiple types of learning disabilities, and each have their own fingerprint.

According to the National Center for Learning Disabilities, about 10% of children in the U.S. live with some form of learning and attention issues. They range from the “specific learning disabilities” – which is the lawful designation under the Individuals with Education Disabilities Act (IDEA) – to the related but slightly different disorders that don’t quite get the same designation.

Here are a few of the more common types of specific learning disabilities and their traits:

Dyslexia

Referred to as a Language-based disability, where a person has trouble deciphering written words. This disorder makes it difficult to comprehend, recall, write, or spell words.

Approximately 15% of people have some form of dyslexia.

Dysgraphia

A learning disability that affects handwriting and fine motor skills. This disability can make it difficult to spell, write legibly, or think while writing.

Approximately 7% – 15% of people have some form of dysgraphia.

Auditory Processing Disorder

A sensory disorder that affects how the brain interprets sounds. Even if a person has normal hearing and vision, this disability can make it difficult to process sounds to make any meaningful connection.

Approximately 5% of children are living with a form of APD

Language Processing Disorder

A sensory disorder very similar to APD, but specific to interpreting language. This disorder makes it difficult to process words or sentences into receptive communication. Speech is also impeded.

The percentage of diagnosis is similar to APD, but there are specific areas of difference

Visual Perception Disorder

A disorder that affects how the brain processes visual stimuli. It can make drawing or copying shapes very difficult. It can also affect hand/eye coordination.

The symptoms and percentage of diagnosis can overlap with those of dyslexia, but there are specific areas of difference

Nonverbal Learning Disorder

A neurological disorder that affects the interpretation of body language, facial expressions, or other nonverbal communication. This disorder can also cause a person to have weaker visual-spatial and social skills.

Studies suggest that approximately 1% of people are diagnosed with a specific NVLD. However, this disorder is most closely connected to Asperger’s syndrome

Learning disorders are different from other conditions such as deafness, blindness, and autism. While these conditions can make learning difficult, they aren’t considered learning disabilities under Federal law. Also, attention disorders such as Attention Deficit Hyperactivity Disorder (ADHD) is often designated as a learning disorder, but it is not. Differentiating between attention disorders and specific learning disabilities can aid in proper diagnosis and helpful treatment.

Treatment for learning disabilities

If your child has a learning disability, it doesn’t mean they have an illness that needs to be cured. While they do have a lifelong condition, there are treatments that can allow these conditions to be managed.

It’s important to understand that there could be some co-occurring issues that arise with their disability that you may have to be prepared for as well. The key is to first educate your child about their disability so they can better understand their learning patterns. This will help to fend off any frustration when face difficulty related to their disorder.

Secondly, infusing learning exercises and other therapy tools into the daily routine can go a long way for positive reinforcement. In addition, it could encourage any gradual improvement in your child’s condition as they get older. Here’s more info on the potential co-occuring issues and practical treatment tips for each of the specific learning disabilities:

DISORDER MEDICATION TOOLS/TECHNIQUES
Dyslexia
  • Medication will only help with treating anxiety, depression, and ADHD.
  • Other treatments such as behavioral cognitive therapy can also help.
  • Multisensory techniques such as word games, songs, and implementing physical touch to practice word recognition and recall.
Dysgraphia
  • Medication will only help with treating anxiety, depression, and ADHD.
  • Other treatments such as behavioral cognitive therapy can also help.
  • Writing tools such as pencil grips, paper with highlighted lines, graphic organizers, and handwriting apps.
Auditory Processing Disorder
  • Medication to treat ADHD and anxiety only.
  • Speech therapy
  • Auditory training therapy
  • Word repetition gamesy
Language Processing Disorder
  • Medication to treat ADHD and anxiety only.
  • Comfortable environments that aren’t very loud or visually stimulating.
  • Speech therapy
  • Occupational therapy
Visual Perception Disorder
  • Medication will only help with treating anxiety, depression, and ADHD.
  • Behavioral vision therapy
  • Educational therapy
  • Physical stimuli such as sensory gyms
Nonverbal Learning Disorder
  • Medication will only help with treating anxiety, depression, and ADHD
  • Cognitive behavioral therapy
  • Speech therapy
  • Interaction with social skills coaches or small groups

Educational resources for children with learning disabilities

Thanks to the Individuals with Disabilities Education Act (IDEA), it’s law in this country to provide free and appropriate public education to children with disabilities (FAPE). This means children who experience specific learning or attention-related disorders should be provided non-discriminatory, targeted educational services from infancy through age 21. Although these services can seem pretty straightforward, there are some unique traits that are specific to the child’s condition. It’s also important to note that not all children will be eligible for these services.

Eligibility

If you suspect your child should receive special education services, their public school will follow federal regulations to evaluate your child. There are two steps to this evaluation process.

The first step is an educational evaluation. This is usually conducted by the child’s teachers along with the school psychologist. The evaluation includes observing the child in the classroom and evaluating their academic records. A determination is also made during this stage whether or not the child has at least one of the 13 disabilities that are covered under IDEA. Afterwich, a report is written up.

The second step is the eligibility determination. Based on the evaluation, the school will decide if your child’s disability calls for special education services. Even if your child is shown to have one of the 13 covered disabilities, it still doesn’t guarantee that special services will be granted. The school may determine that despite your child’s disability, they are still learning at an acceptable rate within the general classroom setting. If special education services are granted, they will work with you to create an appropriate program for your child within 30 days.

Individualized Education Program (IEP)

Once your child is granted special education services, an Individualized Education Program is created. An IEP is a written statement, detailing the purpose, goals, and services related to your child’s needs. These statements are required for anyone who’s receiving special education.

It goes without saying, but it’s vital for parents to be involved with the development of the child’s IEP. It’s just as important for the student (if they’re of age) to be involved in the process as well. Specifically, students who will be transitioning to adulthood soon are encouraged to learn and have a say in as much as they can.

As the annual goals are met during the IEP, your child will be monitored to determine if any adjustments to the program are warranted. These can be helpful benchmarks if you decide to change schools or if there are any administrative changes. Regardless, your child must be reevaluated every three years to determine if they are still eligible for an IEP.

Professionals in the classroom who conduct various phases of the IEP include:

  • A psychologist
  • A speech therapist
  • A physical therapist
  • A vision or hearing specialist
  • A special educator

Instructional intervention

While an IEP is a strategic plan to help your child learn successfully in the classroom, instructional interventions are methods of tracking their progress. These interventions exist within the overall IEP to allow you to work with educators to monitor the effectiveness of a program. If it’s determined that your child needs a little extra time or additional support on a subject, adjustments will be made through an instructional intervention.

These are usually more targeted towards students with standard academic or behavioral issues rather than students with specific learning disabilities. However, they can be effective in either capacity.

What if my child isn’t granted special education services?

Even though many children are granted eligibility for special education programs at their schools, there are a number who aren’t. It can be tough to get the news that your child has been denied, but it doesn’t mean that your options are eliminated.

504 Plan

If your child isn’t eligible for services under IDEA, schools may encourage you to consider a 504 plan. This is a plan that supports accommodations in the classroom to help manage your child’s learning and attention disorder. Unlike an IEP, a 504 plan doesn’t alter your child’s curriculum. It simply allows for some small adjustments to be made to the learning environment.

Some of the accommodations include:

  • Sitting at the front of the class
  • Allowing for extra time on tests/assignments
  • Taking frequent breaks throughout the school day

Why might someone need to pay for treatment for learning disabilities?

Despite some of the helpful resources provided through the public school system, there are still instances where you’ll need to pay for your child’s treatment.

Your child is outside of the public school system

Some families don’t have access to resources simply because they aren’t in the public school system. Federal law dictates that all children be evaluated for learning disabilities. But free special education services are only provided to eligible public school attendees. Homeschooling or sending your child to private school doesn’t guarantee the same comprehensive coverage.

If your child is found to have a learning disability and they don’t attend public school, you have the option of either changing schools or staying with your private school and receiving equitable services. These are special services that are paid for through public school funding to provide some needed care. However, these funds are limited, so there’s a good chance the services will be limited as well. As a result, families who stay in private school will most likely need to pay for the outside care their child needs.

Here’s more information on special education services provided in private school:

Your child has therapy needs that aren’t provided by the school

Public schools are required to provide free and appropriate public education for kids with disabilities (FAPE). But they aren’t required to provide the very best services available. Your child may have needs that are a little more broad than what might be offered at their school. So purchasing additional services could make sense for you. Or, if you feel more comfortable with a specific private therapist and want to maintain that relationship, that’s also an understandable reason for going outside of school services.

Here are some forms of therapy you might consider if you’re searching for private options:

Payment options for private learning disabilities treatment

If you’re in the position to seek private treatment for your child’s learning disability, the costs involved should factor into your decisions. Though the services through FAPE are free, including the educational evaluations, private evaluations are not free. Neither are the private counselors and specialized schools. Below are the costs involved with treatment for learning disabilities and some options for funding.

Assessments

Performed by Average cost Funding options
Primary doctor Insurance copay ($15-$30)
  • Cash
Pediatric Psychologist $800-$200
  • Health insurance
  • Cash
  • Personal loan
Psychiatrist (Cannot assess learning disabilities, but will recommend medication for co-occurring issues such as ADHD and anxiety.) Insurance copay ($15-$30)
  • Cash

Therapy

Treatment Average cost Funding options
Cognitive-Behavioral Therapy Up to $100 per hour or sliding scale based on income.
  • Health insurance
  • Grants
  • Personal loan
  • Cash
Speech Therapy
  • $200-$250 for initial assessment
  • $100-$200 per hour for regular sessions
  • Copay of 10%-50% for those with insurance
  • Health insurance
  • Grants
  • Employee discounts
  • Personal loan
  • Cash
Educational Therapy
  • $60/hour per session
  • $100-$250 for educational materials
  • Health insurance
  • Grants
  • Employee discounts
  • Personal loan
  • Cash
Occupational Therapy
  • $150-$200 for initial assessment
  • $50-$400 per hour for regular sessions
  • Copay of 10%-50% for those with insurance
  • Health insurance
  • Grants
  • Employee discounts
  • Personal loan
  • Cash

Private School

Level Average tuition Funding options
Elementary school $7,770 per year
  • Government funding
  • Personal loans
  • Cash
High school $13,030 per year
  • Government funding
  • Personal loans
  • Cash

Tax deduction and tuition reimbursement for private school

According to IRS Publication 502, you can include tuition (including room and board) for private school in your medical expenses when filing your taxes. This is an option only if you can prove that your child attends private school primarily for treatment of learning disabilities.

Even if the school is not primarily a special needs school, you can still take advantage of the option to classify your child’s education as a medical expense. It is, however still recommended that you speak to your financial advisor regarding this issue to avoid any miscommunication with your tax filings.

If you were approved for special education services but your public school is not working to adequately meet your needs, you could opt for placement in an approved private school as part of your child’s IEP. These private schools are licensed and approved for tuition reimbursement by the state.

If you prefer a different private school than the one your child is placed in, there’s a chance you could still be eligible for tuition reimbursement, but it depends on a couple of factors. First: Your school district doesn’t offer FAPE to begin with. Second: Your preferred private school is appropriate for your child’s needs.

Unsecured personal loans for disability services

When it comes down to paying for special needs services, leaning on health insurance and personal funds are among the more popular options. The truth is, not everyone is fully insured or confident enough about their financial standing to handle the expense.

An unsecured personal loan could be a helpful tool to offset some of your child’s learning disability needs. Unlike secured loans, an unsecured personal loan doesn’t require you to put up property as collateral (your home, your car). The last thing you want is to be concerned with the state of your assets if a default or something else unexpected were to happen. The hope is to leverage as many high-quality, affordable services as possible. And an unsecured personal loan could provide you with the flexibility and funds you need for your child’s care.

CMC – Human Dimensions of Mathematics

The 2018 California Math Council – Central put on a stunning Symposium March 9-12 at the new Tulare County Office of Education in Visalia, California.  On Friday, March 9th, Leadership Session Speak Matt Larson spoke on “Overcoming Obstacles to Make Mathematics Work FOR Students”.  Saturday, March 11th, the Keynote Speaker was Leslie Hamburger on “Developing Teacher Expertise to Work with English Language Learners”.  Breakout Sessions were lead by Anne Schwartz, Jeanie Behrend, McKenzi Hurick, Priscilla Sustaita-Clark, Nacy Nagatani, Mario Valdez, Chris Atkin, Troy Hayes, Ed Campos, Duane Habecker, LaMar Queen, and Hilda Wright.  Elementary Schools students were also present to model strategies they have learned in their classrooms.  Thanks to all who work so hard for the sake of student learning!

MATHCOUNTS!

Each February, Fresno County Office of Education provides a time and place for MATHCOUNTS CompetitionMATHCOUNTS offers fun and engaging programs that get middle school students excited about math. These programs include the MATHCOUNTS Competition Program, the MATHCOUNTS Club Program, and the MATHCOUNTS Reel Math Challenge.  This year 17 schools competed at The Satellite Student Union at Fresno State.

Winning team, Granite Ridge in Clovis!

Thank you, Jon Dueck for all your work in providing this competition.

The Leader in Me

This summer, I joined this book study with this group in Chatham, Illinois, via Google Docs. My lifetime friend, Pam Hogan, and her team started this move in Chatham in 2016 and as you will hear from the principal, Elizabeth Gregurich, who is an awesome top down supporter, the paradigm shift is visible on their campus.  The district technology lead, Josh Mulvaney, is now involved via the book study,  which took it to district level.

Why did this hit home for me?  As stated in the previous post, finding everyone’s gifts, talents, passions, skills is what I have been preaching about for years.  “Everyone is a Genius”  states Elizabeth Gregurich.  I believe we all put on this planet for purpose and to delve into what those gifts, skills, talents and passions are will help you find yours!  “What is your genius”?

Albert Einstein wrote, “Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid.” The question I have for you at this point of our journey together is, “What is your genius?”

We know that ALL students can learn.  Students learn very differently just as you do.  How do we reach all students?  Differentiating instruction, meeting all modalities, understanding we all learn best at different times of the day, understanding we all don’t hear everything the first time, understanding that everyone is in a different place with prior knowledge, not everyone understands the academic language, and everyone has very different home situations.  These are the many concepts that educators must consider in a day while teaching their topic.

So, I have taken on the task to assist with “peppering” this cultural change onto their already full plate without the feeling of adding more to an already hectic schedule.  I’m looking for inspiration from all of you reading this.  Hoping someone in each district will look at the powerful positive outcome this creates and take it on for the sake of students and community.  Hopefully, this group will develop into assisting each other with ideas that create the interdependence necessary to produce best practices.~Sandy

Enjoy  the video below on how this school implemented the “The 7 Habits for Highly Effective People” through “The Leader In Me” as well as other resources.

 

https://youtu.be/SgkqzMQ91bM

I apologize for the quality but its about getting it said and done, not how perfect it is. ~Sandy

The 7 Habits of Highly Effective People

Currently reading “The Leader In Me”, I awoke with such excitement as to how I can help implement this wonderful idea of creating the paradigm shift that Steve Covey brought to life in 1989 via the business world through the “The 7 Habits of Highly Effective People”.

Being a teacher that began in the early 80s, I realized that many of these were in practice by most elementary schools but not to the degree in which Mr. Covey is suggesting.  Teachers always gave students jobs or tasks and changed them weekly.  Did we realized the ownership that those tasks brought to those students?  I know that we have some incredible ASB groups in our high schools, but we need to share out the leadership in all secondary schools.

Students feel ownership when provided with tasks that need to be done in the classroom and throughout the campus.  Mr. Covey saw the shift from in vocabulary from the school to MY school, the classroom to MY classroom, the school grounds to OUR school grounds.

As we have become more independent learners due to the need of meeting all student needs, have we forgotten the need to work together for the whole of community?  Do we need to take steps back to see how to have students work INTERdependently as well?

In his well-written book, The Leader In Me, the steps are set out on how to begin this paradigm shift.  Simply put, provide a task for students in the classroom, the school, the community.  Ask the students, what can YOU do that I am doing?  Maybe it is reading the morning bulletin, erasing the board at the end of class, gathering or passing out homework, changing bulletin boards, teaching one of the habits monthly, teaching others within the class in small group situations, leading the Pledge of Allegiance, summarizing the lesson or what is due next class period, etc.  This not only helps the teacher, but it helps the students feel ownership in the class.

Professional Learning Communities are no different than what was going on in the past.  Professionals getting together to plan lessons, set the calendar, share what is working, going over tests results to see if teaching or tests need to be changed.  This also is creating an interdependence.

When I was a math coach in Tulare Joint Union School System, our department had an incredible week of finding the needs of students in the classroom.  With the goal being that we didn’t want any of those students falling through the crack, we learned that it was  overwhelming task to meet ALL the needs.  Then we started looking at our own strengths.  What are we best at and how can that assist the entire department.  We assigned tasks to each pair of teachers that would work together to build all that needed to be done to meet the needs of all students for that year.  We had group-test builders, individual-test builders, those creating tasks for the advanced students, those creating assignments for the gaps in learning for the “strugglers”,  those putting the calendar together to meet the goals of the chapters, and more.  It was a beautiful work of interdependence that Mr. Covey is talking about here in his book.  All teachers took ownership in the work that needed to be done to meet the needs of all the mathematics students during 2006.

It’s not about buying in, it is about understanding the need for everyone to work together as teachers, administrators, students and parents to accomplish the goals of doing what is best for the teaching/learning of all students.

For those of you that know me personally, do you see me in this paradigm shift below?  I hope you do and I hope I am now at the 8th Habit!  ~Sandy

In short, this is a cut from wikipedia (https://en.wikipedia.org/wiki/The_7_Habits_of_Highly_Effective_People):

The book first introduces the concept of paradigm shift and helps the reader understand that different perspectives exist, i.e. that two people can see the same thing and yet differ with each other. On this premise, it introduces the seven habits in a proper order.

Each chapter is dedicated to one of the habits, which are represented by the following imperatives:

First Independence

The First Three Habits surround moving from dependence to independence (i.e., self-mastery):

1 – Be Proactive
Talks about the concept of Circle of Influence and Circle of Concern. Work from the center of your influence and constantly work to expand it. Don’t sit and wait in a reactive mode, waiting for problems to happen (Circle of Concern) before taking action.
2 – Begin with the End in Mind
Envision what you want in the future so you can work and plan towards it. Understand how people make decisions in their life. To be effective you need to act based on principles and constantly review your mission statement. Are you – right now – who you want to be? What do I have to say about myself? How do you want to be remembered? Change your life to act and be proactive according to the Habit 1. You are the programmer! Grow and stay humble.
3 – Put First Things First
Talks about difference between Leadership and Management. Leadership in the outside world begins with personal vision and personal leadership. Talks about what is important and what is urgent. Priority should be given in the following order:
1) Important and Urgent
2) Important and not-urgent
3) Not Important and Urgent
4) Not important and Not urgent

Habit 2 says: you are the programmer. Habit 3: Write the program. Become a leader! Keep personal integrity: what you say vs what you do.

Interdependence

The next three habits talk about Interdependence (e.g., working with others):

4 – Think Win-Win
Genuine feelings for mutually beneficial solutions or agreements in your relationships. Value and respect people by understanding a “win” for all is ultimately a better long-term resolution than if only one person in the situation had gotten his way. Think Win-Win isn’t about being nice, nor is it a quick-fix technique. It is a character-based code for human interaction and collaboration.
5 – Seek First to Understand, Then to be Understood
Use empathic listening to genuinely understand a person, which compels them to reciprocate the listening and take an open mind to being influenced by you. This creates an atmosphere of caring, and positive problem solving.
The Habit 5 is greatly embraced in the Greek philosophy represented by 3 words:
1) Ethos – your personal credibility. It’s the trust that you inspire, your Emotional Bank Account.
2) Pathos is the empathic side — it’s the alignment with the emotional trust of another person communication.
3) Logos is the logic — the reasoning part of the presentation.
The order is important: ethos, pathos, logos — your character, and your relationships, and then the logic of your presentation.
6 – Synergize
Combine the strengths of people through positive teamwork, so as to achieve goals that no one could have done alone.

Continuous Improvements

The final habit is that of continuous improvement in both the personal and interpersonal spheres of influence.

7 – Sharpen the Saw
Balance and renew your resources, energy, and health to create a sustainable, long-term, effective lifestyle. It primarily emphasizes exercise for physical renewal, good prayer (meditation, yoga, etc.) and good reading for mental renewal. It also mentions service to society for spiritual renewal.

Covey explains the “Upward Spiral” model in the sharpening the saw section. Through our conscience, along with meaningful and consistent progress, the spiral will result in growth, change, and constant improvement. In essence, one is always attempting to integrate and master the principles outlined in The 7 Habits at progressively higher levels at each iteration. Subsequent development on any habit will render a different experience and you will learn the principles with a deeper understanding. The Upward Spiral model consists of three parts: learn, commit, do. According to Covey, one must be increasingly educating the conscience in order to grow and develop on the upward spiral. The idea of renewal by education will propel one along the path of personal freedom, security, wisdom, and power.[3]

The 8th Habit

8 – Find your voice and inspire others to find theirs.

Reception

The 7 Habits of Highly Effective People has sold more than 25 million copies in 40 languages worldwide, and the audio version has sold 1.5 million copies, and remains one of the best selling nonfiction business books in history. In August 2011 Time listed 7 Habits as one of “The 25 Most Influential Business Management Books”.[4]

New Mobile Education App with Mega Info

New Mobile Application Offers Detailed Information about California’s PK-12 and Adult Education Schools

Source: California Department of Education

URL: http://bit.ly/CA-Schools_App

A new mobile application that offers detailed information about California’s 10,000 public schools was announced last week by State Superintendent of Public Instruction Tom Torlakson.

The free “CA Schools” mobile app, which is available for iOS and Android systems, lets users locate nearby schools based on their current location or search for schools (public or private) by location (e.g., city, district, or ZIP code). The app provides information such as the school’s phone number, address, demographics, and test scores (for public schools).

“Never before have we put so much school information literally in the hands of our students, parents, and community members and made the information so accessible and user-friendly,” Torlakson said.

Visit http://bit.ly/CA-Schools_App for more information about this useful new app. Also see http://bit.ly/CDE-DataQuest-61417 for today’s announcement about DataQuest improvements.

~ To subscribe to COMET, send the following message to listserv@listserv.csufresno.edu: Subscribe COMET [followed by your name]

Example:  Subscribe COMET Albert Einstein

Carol Fry Bohlin, Ph.D.

Professor and Graduate Program Coordinator (M.A. in Education-C&I)

Director, Mathematics and Science Teacher Initiative (MSTI)

Reporter/Editor, California Online Mathematics Education Times (COMET)

California State University, Fresno

5005 N. Maple Ave. M/S ED 2

Fresno, CA  93740-8025 

E-mail: carolb@csufresno.edu

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Autism

Autism is running prevalent today.  My question was, is it getting worse or is it easier to detect due to new brain spects and other technology.  I think it is a little of both.  I enjoyed learning the facts below.   I have great appreciation for all of you parenting and working with these precious children.  Enjoy the following from the Autism Society.  ~Sandy

What is Autism:

Autism spectrum disorder (ASD) is a complex developmental disability; signs typically appear during early childhood and affect a person’s ability to communicate, and interact with others. ASD is defined by a certain set of behaviors and is a “spectrum condition” that affects individuals differently and to varying degrees. There is no known single cause of autism, but increased awareness and early diagnosis/intervention and access to appropriate services/supports lead to significantly improved outcomes. Some of the behaviors associated with autism include delayed learning of language; difficulty making eye contact or holding a conversation; difficulty with executive functioning, which relates to reasoning and planning; narrow, intense interests; poor motor skills’ and sensory sensitivities. Again, a person on the spectrum might follow many of these behaviors or just a few, or many others besides. The diagnosis of autism spectrum disorder is applied based on analysis of all behaviors and their severity.

In 2016, the Centers for Disease Control and Prevention issued their ADDM autism prevalence report. The report concluded that the prevalence of autism had risen to 1 in every 68 births in the United States – nearly twice as great as the 2004 rate of 1 in 125 – and almost 1 in 54 boys. The spotlight shining on autism as a result has opened opportunities for the nation to consider how to serve families facing a lifetime of supports for their children. In June 2014, researchers estimated the lifetime cost of caring for a child with autism is as great as $2.4 million. The Autism Society estimates that the United States is facing almost $90 billion annually in costs for autism. (This figure includes research, insurance costs and non-covered expenses, Medicaid waivers for autism, educational spending, housing, transportation, employment, related therapeutic services and caregiver costs.)

Know the signs: Early identification can change lives

Autism is treatable. Children do not “outgrow” autism, but studies show that early diagnosis and intervention lead to significantly improved outcomes. For more information on developmental milestones, visit the CDC’s “Know the Signs. Act Early” site.

HERE ARE SOME SIGNS TO LOOK FOR IN THE CHILDREN IN YOUR LIFE:

  • Lack of or delay in spoken language
  • Repetitive use of language and/or motor mannerisms (e.g., hand-flapping, twirling objects)
  • Little or no eye contact
  • Lack of interest in peer relationships
  • Lack of spontaneous or make-believe play
  • Persistent fixation on parts of objects

SYMPTOMS:

The characteristic behaviors of autism spectrum disorder may be apparent in infancy (18 to 24 months), but they usually become clearer during early childhood (24 months to 6 years).

As part of a well-baby or well-child visit, your child’s doctor should perform a “developmental screening,” asking specific questions about your baby’s progress. The National Institute of Child Health and Human Development (NICHD) lists five behaviors that warrant further evaluation:

  • Does not babble or coo by 12 months
  • Does not gesture (point, wave, grasp) by 12 months
  • Does not say single words by 16 months
  • Does not say two-word phrases on his or her own by 24 months
  • Has any loss of any language or social skill at any age

Any of these five “red flags” does not mean your child has autism. But because the disorder’s symptoms vary so widely, a child showing these behaviors should be evaluated by a multidisciplinary team. This team might include a neurologist, psychologist, developmental pediatrician, speech/language therapist, learning consultant or other professionals who are knowledgeable about autism.

For more information, visit the Infants and Toddlers page or the CDC’s “Learn the Signs. Act Early” program.

DIAGNOSIS:

When parents or support providers become concerned that their child is not following a typical developmental course, they turn to experts, including psychologists, educators and medical professionals, for a diagnosis.

At first glance, some people with autism may appear to have an intellectual disability, sensory processing issues, or problems with hearing or vision. To complicate matters further, these conditions can co-occur with autism. However, it is important to distinguish autism from other conditions, as an accurate and early autism diagnosis can provide the basis for an appropriate educational and treatment program.

Other medical conditions or syndromes, such as sensory processing disorder, can present symptoms that are confusingly similar to autism’s. This is known as differential diagnosis.

There are many differences between a medical diagnosis and an educational determination, or school evaluation, of a disability. A medical diagnosis is made by a physician based on an assessment of symptoms and diagnostic tests. A medical diagnosis of autism spectrum disorder, for instance, is most frequently made by a physician according to the Diagnostic and Statistical Manual (DSM-5, released 2013) of the American Psychological Association. This manual guides physicians in diagnosing autism spectrum disorder according to a specific number of symptoms.

A brief observation in a single setting cannot present a true picture of someone’s abilities and behaviors. The person’s developmental history and input from parents, caregivers and/or teachers are important components of an accurate diagnosis.

An educational determination is made by a multidisciplinary evaluation team of various school professionals. The evaluation results are reviewed by a team of qualified professionals and the parents to determine whether a student qualifies for special education and related services under the Individuals with Disabilities Education Act (IDEA) (Hawkins, 2009).

CAUSES:

There is no known single cause for autism spectrum disorder, but it is generally accepted that it is caused by abnormalities in brain structure or function. Brain scans show differences in the shape and structure of the brain in children with autism compared to in neurotypical children. Researchers do not know the exact cause of autism but are investigating a number of theories, including the links among heredity, genetics and medical problems.

In many families, there appears to be a pattern of autism or related disabilities, further supporting the theory that the disorder has a genetic basis. While no one gene has been identified as causing autism, researchers are searching for irregular segments of genetic code that children with autism may have inherited. It also appears that some children are born with a susceptibility to autism, but researchers have not yet identified a single “trigger” that causes autism to develop.

Other researchers are investigating the possibility that under certain conditions, a cluster of unstable genes may interfere with brain development, resulting in autism. Still other researchers are investigating problems during pregnancy or delivery as well as environmental factors such as viral infections, metabolic imbalances and exposure to chemicals.

Genetic Vulnerability

Autism tends to occur more frequently than expected among individuals who have certain medical conditions, including fragile X syndrome, tuberous sclerosis, congenital rubella syndrome and untreated phenylketonuria (PKU). Some harmful substances ingested during pregnancy also have been associated with an increased risk of autism.

FACTS AND STATISTICS:

About 1 percent of the world population has autism spectrum disorder. (CDC, 2014)

Prevalence in the United States is estimated at 1 in 68 births. (CDC, 2014)

More than 3.5 million Americans live with an autism spectrum disorder. (Buescher et al., 2014)

Prevalence of autism in U.S. children increased by 119.4 percent from 2000 (1 in 150) to 2010 (1 in 68). (CDC, 2014) Autism is the fastest-growing developmental disability. (CDC, 2008)

Prevalence has increased by 6-15 percent each year from 2002 to 2010. (Based on biennial numbers from the CDC)

Autism services cost U.S. citizens $236-262 billion annually. (Buescher et al., 2014)

A majority of costs in the U.S. are in adult services – $175-196 billion, compared to $61-66 billion for children. (Buescher et al., 2014)

Cost of lifelong care can be reduced by 2/3 with early diagnosis and intervention. (Autism. 2007 Sep;11(5):453-63; The economic consequences of autistic spectrum disorder among children in a Swedish municipality. Järbrink K1.)

1 percent of the adult population of the United Kingdom has autism spectrum disorder. (Brugha T.S. et al., 2011)

The U.S. cost of autism over the lifespan is about $2.4 million for a person with an intellectual disability, or $1.4 million for a person without intellectual disability. (Buescher et al., 2014)

35 percent of young adults (ages 19-23) with autism have not had a job or received postgraduate education after leaving high school. (Shattuck et al., 2012)

It costs more than $8,600 extra per year to educate a student with autism. (Lavelle et al., 2014) (The average cost of educating a student is about $12,000 – NCES, 2014)

In June 2014, only 19.3 percent of people with disabilities in the U.S. were participating in the labor force – working or seeking work. Of those, 12.9 percent were unemployed, meaning only 16.8 percent of the population with disabilities was employed. (By contrast, 69.3 percent of people without disabilities were in the labor force, and 65 percent of the population without disabilities was employed.) (Bureau of Labor Statistics, 2014)

FOR MORE INFORMATION OR TO DONATE:  https://www.autism-society.org/